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Research campaign

The Big Six  

The Somerville Foundation (TSF) has always worked hard to improve the lives of people who were born with a heart condition. However more, much, much more needs to be done, especially when it comes to research. There are some fantastic examples of research being carried out within the summer 2015 edition of GUCH News. TSF welcomes and supports this research, however it is only the tip of the iceberg. The sad reality is that too many GUCH patients are dying prematurely, live restricted and in some cases unhappy lives, as a direct result of their heart condition. We are a long way from having all the answers. 

This is why we are launching TSF’s Big Six Research Campaign. We have a vision of the world where every GUCH condition is treatable and patients live full and happy lives. It will be a long hard fight to get there, however GUCH patients and their families have always been fighters and together we can and will achieve our dream. 

There are enormous opportunities to research new and better treatments for today’s GUCH patients (for whom prevention is not currently an option). This isn’t just restricted to purely physical interventions, researchers need to find out how to best support patients mental health, so that GUCHs and their families live as healthy lives as possible. 

Please spread the word: The more people who help us, the more we can do to help GUCH patients and their families and the faster we can make our dream a reality.



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