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The process to improve future NHS services for adults with congenital heart disease (ACHD/GUCH) in England is underway. The NHS has been working closely with ACHD/GUCH patients, clinical staff and other relevant stakeholders to develop proposals to consult the public on the future of GUCH services.

A period of stakeholder engagement took place from 18 May 2012 – 27 July 2012 to gather the views of patients and their families, NHS staff, clinicians and other groups on the proposed model of care. Feedback was gathered in a number of ways, including at a number of workshops with patients, families, clinicians, young people and people from black and minority ethnic communities. Members of the public also submitted their views by letter and e-mail.

Feedback from the engagement period will be captured in a report which will be reviewed throughout Autumn 2012 and used to draft national designations standards. A group of independent experts will then visit centres and assess them against their ability to meet the draft standards. Once options on how to improve services for people with ACHD have been published, a period of formal public consultation will be undertaken to ensure everyone has the opportunity to contribute their views.

For more details visit the NHS Specialised Services website.

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