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Resources

See below for all of our current publications and use the menu on the left to access Specialist Centres, NHS GUCH Guide, Useful Links and International Directory.

Publications

Use this page to find our free publications. You can choose to View the leaflet online using Acrobat Reader, or Download. If you would prefer to receive a hard copy of your chosen leaflet email publications@thesf.org.uk. Health professionals, please use this email address also to place your order.   

Alternative formats

If you require any of these publications in an alternative format such as large print, braille and audio versions, please contact publications@thesf.org.uk.  

Personal Health Passport

Personal Health Passport

For your own pocket-sized copy of our Personal Health Passport, contact publications@thesf.org.uk or call The Somerville Foundation office on 01473 252007.

Download Personal Health Passport PDF
A Guide to Adult Cardiac Care (Transition)

A Guide to Adult Cardiac Care (Transition)

Growing up can be an exciting time, with many changes and opportunities; a first job, going to university, new friends and new relationships. It will also mean that at some point, when are you are between the ages of 16 and 18 years, you will transfer from the children’s hospital services where you have been seen for your heart condition until now, to adult hospital services.

Download A Guide to Adult Cardiac Care (Transition) PDF
Contraception for Woman

Contraception for Women with a Heart Condition

There are several types of contraception available that work in different ways, and some also provide protection against sexually transmitted infections (STIs). In this leaflet we will hopefully provide you with information so you know which are safe and effective for YOU!

Download Contraception for Woman with a Heart Condition PDF
GUCH and Pregnancy

GUCH and Pregnancy

It is a tribute to modern day infant heart surgery that those born with congenital heart problems can now consider having children themselves. Congenital heart defects (CHD) also known as GUCH (Grown Up Congenital Heart) complicate about 1 in 100 live births in the UK. Many of these heart defects are simple but about 40% are more complex, but thanks to advances in modern medicine most of these heart lesions are now treatable. .

Download GUCH and Pregnancy PDF
Lifestyle Issues

Lifestyle Issues

This leaflet is designed to provide you with advice on some lifestyle choices and issues that may be related to your heart condition. The aim of the leaflet is to provide you with information so you can make the decisions for yourself.

Download Lifestyle Issues PDF
Travel Information

Travel Information

This leaflet gives information on travelling for adults who were born with a heart condition (congenital heart condition). Having a congenital heart condition doesn’t mean you can’t travel but it may require a bit of advance planning. It is a good idea to talk to your GUCH Specialist Nurse or GUCH Cardiologist about your travel plans.

Download Travel Information PDF
Travel Insurance

Travel Insurance

The travel insurance market can be a minefield, especially for those with an existing medical condition, so we are happy to be able to offer the following option as a reasonable policy with cover at a decent rate for most GUCH patients.

Download Travel Insurance PDF
Why Fundraise?

Why Fundraise?

No matter how large or small the amount of money you raise, it all goes to support our work around the UK and really does make a big difference. Fundraising – the clue is in the name – it’s meant to be FUN! Whether you are organising a local coffee morning with neighbours, or a huge outdoor concert, remember that this is an activity to be ENJOYED – so make sure you have a good time!

Download Why Fundraise? PDF
Every gift in a will makes a difference

Every gift in a will makes a difference

The income we have received from gifts in Wills in the past has enabled us to continue our work; a gift in your Will of any size will help us do so in the future.

Download Every gift in a will makes a difference PDF
Transposition of the Great Arteries

Transposition of the Great Arteries

This leaflet provides information to help you understand the heart condition with which you were born and to make choices about your treatment. Your medical team will work in partnership with you and help you make informed decisions. Remember though it is your heart, your life and ultimately your choices.

Download Transposition of the Great Arteries PDF
Tetralogy of Fallot

Tetralogy of Fallot

This leaflet provides information to help you understand the heart condition with which you were born and to make choices about your treatment. Your medical team will work in partnership with you and help you make informed decisions. Remember though it is your heart, your life and ultimately your choices.

Download Tetralogy of Fallot PDF

Eisenmenger syndrome

This leaflet, written by Dr Veldtman and Melanie Finch from Southampton Hospital, is designed to provide you with information about Eisenmenger Syndrome. Download Eisenmenger Syndrome leaflet PDF.

Download Eisenmenger syndrome PDF
PAH CHD Eisenmenger

PAH with CHD/Eisenmenger’s syndrome

This booklet provides information to help you understand pulmonary arterial hypertension (PAH) with congenital heart disease (CHD). This includes how the conditions are linked and their effect on you. Download Eisenmenger Syndrome leaflet PDF.

Download PAH with CHD/Eisenmenger’s syndrome PDF
ramadan-crescent-moon

Ramadan Information for ACHD patients

For patients who wish to observe Ramadan despite having complex congenital heart disease, the ACHD team at University Hospital Birmingham have produced this leaflet. If you would like to provide feedback on the leaflet please contact: Sarah.Bowater@uhb.nhs.uk
Download Ramadan and Congenital Heart Disease - a guide for patients

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Help & Advice

Information on managing your heart condition, including Physical, Emotional and Mental Health.

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Make a donation to The Somerville Foundation today and you will help us to continue to offer the valuable services we provide to those born with a heart condition.