Resources
See below for all of our current publications and use the menu on the left to access Specialist Centres, NHS GUCH Guide, Useful Links and International Directory.
Publications
Use this page to find our free publications. You can choose to View the leaflet online using
Acrobat Reader, or Download. If you would prefer to receive a hard copy of your chosen leaflet email
publications@thesf.org.uk. Health professionals, please use this email address also to place your order.
Alternative formats
If you require any of these publications in an alternative format such as large print, braille and audio versions, please contact
publications@thesf.org.uk.
A Guide to Adult Cardiac Care (Transition)
Growing up can be an exciting time, with many changes and opportunities; a first job, going to university, new friends and new relationships. It will also mean that at some point, when are you are between the ages of 16 and 18 years, you will transfer from the children’s hospital services where you have been seen for your heart condition until now, to adult hospital services.
Download A Guide to Adult Cardiac Care (Transition) PDF
Contraception for Women with a Heart Condition
There are several types of contraception available that work in different ways, and some also provide protection against sexually transmitted infections (STIs). In this leaflet we will hopefully provide you with information so you know which are safe and effective for YOU!
Download Contraception for Woman with a Heart Condition PDF
GUCH and Pregnancy
It is a tribute to modern day infant heart surgery that those born with congenital heart problems can now consider having children themselves. Congenital heart defects (CHD) also known as GUCH (Grown Up Congenital Heart) complicate about 1 in 100 live births in the UK. Many of these heart defects are simple but about 40% are more complex, but thanks to advances in modern medicine most of these heart lesions are now treatable. .
Download GUCH and Pregnancy PDF
Lifestyle Issues
This leaflet is designed to provide you with advice on some lifestyle choices and issues that may be related to your heart condition. The aim of the leaflet is to provide you with information so you can make the decisions for yourself.
Download Lifestyle Issues PDF
Travel Information
This leaflet gives information on travelling for adults who were born with a heart condition (congenital heart condition). Having a congenital heart condition doesn’t mean you can’t travel but it may require a bit of advance planning. It is a good idea to talk to your GUCH Specialist Nurse or GUCH Cardiologist about your travel plans.
Download Travel Information PDF
Travel Insurance
The travel insurance market can be a minefield, especially for those with an existing medical condition, so we are happy to be able to offer the following option as a reasonable policy with cover at a decent rate for most GUCH patients.
Download Travel Insurance PDF
Why Fundraise?
No matter how large or small the amount of money you raise, it all goes to support our work around the UK and really does make a big difference. Fundraising – the clue is in the name – it’s meant to be FUN! Whether you are organising a local coffee morning with neighbours, or a huge outdoor concert, remember that this is an activity to be ENJOYED – so make sure you have a good time!
Download Why Fundraise? PDF
Transposition of the Great Arteries
This leaflet provides information to help you understand the heart condition with which you were born and to make choices about your treatment. Your medical team will work in partnership with you and help you make informed decisions. Remember though it is your heart, your life and ultimately your choices.
Download Transposition of the Great Arteries PDF
Tetralogy of Fallot
This leaflet provides information to help you understand the heart condition with which you were born and to make choices about your treatment. Your medical team will work in partnership with you and help you make informed decisions. Remember though it is your heart, your life and ultimately your choices.
Download Tetralogy of Fallot PDF
Eisenmenger syndrome
This leaflet, written by Dr Veldtman and Melanie Finch from Southampton Hospital, is designed to provide you with information about Eisenmenger Syndrome.
Download Eisenmenger Syndrome leaflet PDF.
Download Eisenmenger syndrome PDF
PAH with CHD/Eisenmenger’s syndrome
This booklet provides information to help you understand pulmonary arterial hypertension (PAH) with congenital heart disease (CHD). This includes how the conditions are linked and their effect on you.
Download Eisenmenger Syndrome leaflet PDF.
Download PAH with CHD/Eisenmenger’s syndrome PDF