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Inspirational Stories

Mother and Daughter Perspectives on the Heart

One heart condition, two sides of the story. Wendy Sterry and her daughter, GUCH patient Nicola, share their experiences of a heart condition.

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A Journey to the Heart

I was two when I was diagnosed with aortic stenosis, a narrowing of the aortic valve. A few years ago I started to become very tired and breathless.

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Surgery: Yes, it can be very, very scary (but you are not alone)

I was born with Aortic Stenosis. I had a valvotomy at birth and have a fine scar to show for it!

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TGA, VSD? It’s (not) all Greek to me!

I am sure that this sentence is all Greek to you but these were more or less the words that my cardiologist used when he said "George, the time for the surgery has come"

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Completely out of the blue

The first indication that I might have a heart condition was in October 2009, when I started to experience mild chest pain and palpitations at rest.

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Telling children about Mummy or Daddy being a GUCH

As I walked in the door, I was met by expectant faces – they all knew where I had been. All clear for another year. Good news. My 8 year old son Max threw his arms around me and said “I don’t want someone to touch mummy’s heart”.

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My heart transplant

On 31st July 2009, at 5 o’clock in the morning, I was called to Papworth Hospital for a heart transplant. This was the third call I had received whilst on the waiting list.

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How I became a GUCH volunteer

Pauline Rose is an invaluable member of our telephone helpline team. Here, she talks about how she got to be involved with GUCH PA.

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Noonan's Syndrome

I was born in Brussels. I was a premature baby, born by caesarean at 33 weeks. I was born with a hole in my heart, mild Pulmonary Stenosis and ptosis-strabismus.

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Just a routine check-up?

Many GUCHs experience the best of health, with only annual check-ups reminding them of their heart condition. So it can come as a shock when a routine ECG reveals the need for surgery.

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Help & Advice

Information on managing your heart condition, including Physical, Emotional and Mental Health.

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image description Make a Donation

Make a donation to The Somerville Foundation today and you will help us to continue to offer the valuable services we provide to those born with a heart condition.