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Since we began in 1993 we have:  

  • Opened the UK's first dedicated Congenital Heart Research Centre, located at the University of Suffolk. Read more here.
  • Launched a Freephone Patient Helpline that takes calls from throughout the United Kingdom. The Helpline is staffed by volunteers who provide a 'listening ear' and emotional reassurance at times of stress. They also offer advice on practical matters of daily living with a congenital heart problem. 
  • Published a range of leaflets that have been specially written for congenital heart patients on topics such as Lifestyle Issues, Travel Insurance and Pregnancy as well as produced a pocket-sized Personal Health Passport. Useful for keeping all the information you need to know about your condition in one place.
  • Published a newsletter that is written for and by GUCHs and produced four times a year. Circulation is approximately 4,000 each quarter, which includes members, supporters and medical, healthcare and social care professionals. 
  • Developed this website that receives many visitors from the UK and abroad, and opened our online forum where congenital heart patients can connect with each other. 
  • Established a benevolent fund to receive applications from members who are in financial hardship. A team of grant makers make recommendations and awards. 
  • Organised residential weekends and outward bound holidays for teenagers and adults, providing congenital heart patients with the opportunity to meet and gain support from each other. Activity holidays encourage personal development and increase self-confidence. 
  • Staged annual conferences, regional patient information days and workshops, throughout the UK. Each event offers congenital heart patients the chance to hear from distinguished professionals on relevant topics and meet others. 
  • Contributed regularly to adult congenital heart disease nurse training days and taken part in various study days and conferences for medical and health professionals, including the bi-annual EuroHeart conferences. 
  • Successfully applied for a Comic Relief grant. The grant provided funds for developing mental health support services and included the appointment of our Mental Health Support Worker. 
  • Organised various social, publicity and fundraising events, including receptions at the House of Lords and House of Commons, a film première, concerts, parachute jumps, marathon runs, annual sponsored walks and masquerade balls. 
  • Achieved 'Investing in Volunteers' status 
The Somerville Foundation does not charge a membership fee. We rely on voluntary donations, fundraising, and grants to continue our work. 

If you would like to help us to support young people and adults born with a heart condition, make a donation.

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Help & Advice

Information on managing your heart condition, including Physical, Emotional and Mental Health.

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Make a donation to The Somerville Foundation today and you will help us to continue to offer the valuable services we provide to those born with a heart condition.